I just saw a Frontline documentary last night on ALS (Lou Gehrig’s disease) that hit on the unfortunate funding matter of how ALS is an orphan disease. A fact that I was unaware of.
It's these few times when I’m reminded of when the government does something that I really like, such as the Orphan Drug Act. (As an aside; I’ve mentioned the ODA once before.) But let me also say that this documentary also shows how foundations can get far as well on donations and operating as a non-profit. Also, I'm personally always skeptical as to when the government should give subsidies, but on the Orphan Drug Act, I'm very approving of the legislation.
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